PRIORITY: Our Community Registry

Patient Reported Input and Outcomes through Research by the Sickle Cell CommunITY


In our quest to contribute to the improvement of medical care and making more pharmaceutical options available for people living with sickle cell disease or sickle cell trait, we make clinical studies more accessible.

Community Study Findings

Check out the results from our latest survey study. We won’t leave you hanging…
See what the sickle cell community is saying.

Join the PRIORITY Community Registry

Use your voice for sickle cell research.

Research doesn’t just happen in a clinical setting. Often times all it requires is you sharing of your thoughts and experiences as it pertains to sickle cell. Answering questions like the following is contribution to sickle cell research. Join the PRIORITY registry today to help move sickle cell research forward. We’ll reach out to you with study opportunities. 


Which of the following would you like to see more research for?