Peer-to-Peer (iP2P) Mentoring Program for Youth With Sickle Cell Disease: A Pilot Feasibility Randomized Controlled Trial

About the study

The iPeer2Peer Sickle Cell Disease (SCD) study matches youth (12-18 years of age) with SCD to a mentor (trained young adult) who has learned to manage their SCD well, transitioned to adult care, and can support youth participants emotionally and socially. Participants will be randomly assigned one of two groups, either (1) The intervention group: Study group participants are matched with a mentor for 15 weeks, and are expected to have up to ten calls with one another; (2) The control group: This study group will be on a 15 week waitlist to receive a mentor. This study will first assess the feasibility of conducting this research with youth with SCD. Also, this study will assess the preliminary effectiveness of peer mentorship by comparing various health outcomes of the two study groups post-intervention.

Study point of contact

Celia Cassiani, BSc, MSc
416-813-7654
celia.cassiani@sickkids.ca
Jennifer N Stinson, CPNP, PhD
416-813-7654
jennifer.stinson@sickkids.ca

Locations

3 Canada sites

1 United States site

Age

12 to 18 Years

Phase

Not Applicable

Study type

Interventional

Gender

All

Interventions

Behavioral

Compensation

Unknown

participation requirements

Aged 12-18 years old
Diagnosed with SCD by a haematologist
Able to speak and read English
Access to Internet connection with computer capable of using free Skype software
Willing and able to complete online measures.

participation restrictions

Significant cognitive impairments
Major co-morbid illnesses (medical or psychiatric conditions) likely to influence HRQoL assessment
Currently participating in other peer support or self-management interventions.

Locations

  • Hartford, Connecticut, United States, Connecticut Children's Medical Center, 06106 [Recruiting]
  • Ottawa, Ontario, Canada, Children's Hospital of Eastern Ontario (CHEO) [Recruiting]
  • Toronto, Ontario, Canada, The Hospital for Sick Children [Recruiting]
  • Saskatoon, Saskatchewan, Canada, Jim Pattison [Recruiting]
Last updated 2022-05-16