The iPeer2Peer Sickle Cell Disease (SCD) study matches youth (12-18 years of age) with SCD to a mentor (trained young adult) who has learned to manage their SCD well, transitioned to adult care, and can support youth participants emotionally and socially. Participants will be randomly assigned one of two groups, either (1) The intervention group: Study group participants are matched with a mentor for 15 weeks, and are expected to have up to ten calls with one another; (2) The control group: This study group will be on a 15 week waitlist to receive a mentor. This study will first assess the feasibility of conducting this research with youth with SCD. Also, this study will assess the preliminary effectiveness of peer mentorship by comparing various health outcomes of the two study groups post-intervention.
| Celia Cassiani, BSc, MSc | |
| 416-813-7654 | |
| celia.cassiani@sickkids.ca |
| Jennifer N Stinson, CPNP, PhD | |
| 416-813-7654 | |
| jennifer.stinson@sickkids.ca |
3 Canada sites
1 United States site
12 Years - 18 Years
Not Applicable
Interventional
All
Behavioral
Aged 12-18 years old
Diagnosed with SCD by a haematologist
Able to speak and read English
Access to Internet connection with computer capable of using free Skype software
Willing and able to complete online measures.
Significant cognitive impairments
Major co-morbid illnesses (medical or psychiatric conditions) likely to influence HRQoL assessment
Currently participating in other peer support or self-management interventions.