|Jerlym Porter, PhD, MPH|
2 United States sites
16 to 20 Years
Diagnosis of sickle cell disease (all genotypes).
Age 16.0 – 20.99 years at initial assessment.
Primary language is English.
Participant unable to complete the questionnaires due to refusal, current acute illness (e.g., pain crisis), or significant cognitive impairment as judged by health care providers at the SCD clinic.
Inability or unwillingness of research participant or legal guardian/representative to give written informed consent.