MOVING SICKLE CELL

RESEARCH FORWARD.

Sickle Cell Research Testimonials

Making an Informed Decision As a Family

4 mins WATCH NOW

Jewel is a teenager living with sickle cell disease. She and her mother, Paula make informed decision about participating in clinical studies.

My Contribution to Clinical Studies

3 mins WATCH NOW

Ada Gonzalez lives with sickle cell disease and enrolled in a clinical study decades ago that she benefits from today.

Research for Adults Aging with Sickle Cell

3 mins WATCH NOW

Andre, an adult living with sickle cell disease, talks about the need for treatment options for the aging and future generations with sickle cell disease.

Updates

CRISPR/Cas9 Gene-Editing Therapy, CTX001™ at European Hematology Association Annual Meeting

08 Jul 2021

CTX001 is being investigated in two ongoing Phase 1/2 clinical trials as a potential one-time therapy for patients suffering from transfusion-dependent beta thalassemia (TDT) and severe sickle cell disease (SCD). In total, more than 40 patients have been dosed across both studies to date. All 15 patients with TDT, including six who have the beta […]

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Treatment of Acute Pain in Adults With Sickle Cell Disease in an Infusion Center Versus the Emergency Department

06 Jul 2021

Patients with sickle cell disease (SCD) have vaso-occlusive crises (VOCs). Infusion centers (ICs) are alternatives to emergency department (ED) care and may improve patient outcomes.

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Advocate for sickle cell disease awareness shares blood shortage concerns

23 Jun 2021

The American Red Cross says we are in the midst of a severe blood donation shortage. “People with sickle cell disease depend on blood transfusions regularly.”

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